The photo and interview series Humans of New York recently did a group of stories on pediatric cancer, and the story of Max hit me especially hard. Like many of the others, it was a story of a child who died from pediatric cancer at age 7, as told by his mother; but unlike the others, his mother was in a lesbian relationship, and her son was conceived by IVF. She originally conceived twins, and aborted one of them “because I was scared at the time.” Now that her son is dead, she knows the decision to kill his twin “will haunt me for the rest of my life.”
What was your reaction on reading this story? I’ll be honest: I was crushed by the sorrow of it, but I also judged the mother. How could she have created her children so selfishly? How could she complain about one of them dying, when she purposely killed the other one? Why did she think it was a good idea to bring up children without a father? I almost felt as if she did not have a full right to her grief, because she wasn’t a real mother.
Then I kept reading. I saw tender details, like her memories of her son, the way she appreciated the tiniest pieces of his personality, the way she was unable to tell him he was dying, and blamed herself for not having the courage to do it. She was his mother. She suffered like a mother. She was as true a mother as any heterosexual, married, biological mother could be. Her grief was real.
To be merciful is to understand someone’s life, someone’s grief, as they understand it; not as you think it should be. To be merciful is to love Max’s broken, guilty mother, because she loved her son. Jesus have mercy.
(4/5) “I think I have post traumatic stress. I have so many horrible flashbacks. Two weeks after Max was diagnosed, he asked me if I’d be his Mommy forever. I said, ‘Of course I will.’ And he asked: ‘Even when I’m ninety?’ And I told him ‘yes.’ What was I supposed to say? And there were all the times he talked to me about the future. We’d talk about college. I just couldn’t tell him. God I was such a coward. I should have told him. I just couldn’t do it. Even toward the end. The day before he lost consciousness, I read his favorite book to him. It’s called Runaway Bunny. And the little bunny keeps threatening to run away. And the Mama bunny keeps saying: ‘Wherever you go, I will find you.’ Oh God, it was such a horrible way to die. He couldn’t speak or move or swallow or see. He basically starved to death. And the whole last week I’m whispering in his ear: ‘Let go, let go. Please Max, let go.’ My seven-year-old son. I’m telling him to let go. I mean, fuck. That’s not supposed to happen! And the whole time I never told him he was dying. I was such a coward. But he knew. He knew without me telling him. Because a couple weeks before he lost his speech, he asked me: ‘Mommy, do they speak English where I’m going?’” ——————————————————–Today is the last day of our fundraiser to aid Memorial Sloan Kettering Cancer Center in their fight against pediatric cancer. Over 65,000 people have donated and we’ve raised over $2.3 million so far. Max’s tumor is the same tumor that Dr. Souweidane is working on curing. (See previous story). In fact, Max was supposed to be part of Dr. Souweidane’s first clinical trial but he passed away too soon. I promised Julie that all money raised during the telling of Max’s story would be given to Dr. Souwedaine and his colleagues to aid in their DIPG research. The gift will be given in Max’s honor. Even if it’s a small amount, please consider donating. Link in bio.
Image belongs to Humans of New York on Instagram; I do not own this image.